Thursday, August 21, 2014
Finish Line!
223 days -- from the first day of chemo to the last day of radiation. 223 days of grit, determination, challenges, and a few tears. 223 days of being constantly amazed at the love and support that I received.
Am I 'cancer free'?? Only time will tell -- but for now, we can consider the bitch's ass kicked!
So what did I do to celebrate? Pop champagne? Go out to a really fancy dinner? Nope... instead I chose to get my WOD on (Workout Of the Day) at the CrossFit X's Ladies Night with 24+ amazing women all cheering each other on. It's been months since I've attempted any kind of cardio, but this was just what I needed to get back in the game.
Monday, July 28, 2014
Burning Through Radiation
The radiation portion of my treatment has begun. 35 daily (Monday thru Friday) treatments. So far - I'm 17 treatments in - there are no visible side-effects. There's a chance I will get a bit of a sunburn feel to the treated area and also some fatigue, though nothing like the fatigue I felt during chemo. I'm guessing that the effects of all this will be cumulative, so it may be a couple more weeks before my body catches up to what's happening.
So, what's a typical treatment session like? Weird. It's all just weird.
I arrive at the Cancer Center and head back to the radiation waiting area. There are some chairs and the usual scattering of old magazines to read. There is also a table with a puzzle on it, so most of us poke away at the puzzle while we wait. A large glass door opens and one of the radiation technicians comes out to get you. They pull a warm blanket out of something that looks like a refrigerator and back you go to a huge room:
They hold the blanket up to you while you strip down to your waist (all sense of modesty or embarrassment has been completely removed from my psyche by now) and then hand you the blanket as you walk over to lay down on the 'bed'. Between me and the 'bed' is a blue "form". Before treatment began, I was brought in for a set-up session where I laid down on what felt like a bean bag pillow. The technician packed the bean bag all around me and then sucked all the air out.. leaving a hard form that forces me to lay in the exact same position for every treatment.
Once I'm laying in my usual position, the blanket gets removed from my right side (there goes the modesty again) and 2 to 3 technicians all stare down at me while one of them has a large remote control in their hand and moves the bed this way and that trying to line everything up. A light is shining down on me that illuminates a ruler, and the technicians rattle off various numbers to each other. Once I'm all set the way they like it, they leave the room and that large machine rotates around me and stops in 4 different locations and makes a long beep sound -- that's the radiation beam going off.
That's it. From the time I walk in, to the time I walk out, takes about 10 minutes.
So, why am I doing this? Didn't the chemo kill everything possible? Well, yes and no. The chemo goes through the bloodstream and kills off any potential cancer cells it can, but blood doesn't go everywhere. It doesn't penetrate scar tissue, nor the milk ducts of the breast - which is where my cancer started in the first place. That's where the radiation comes in. It specifically targets those areas on my effected side, once again killing cells. Healthy cells regenerate - cancer cells can't regenerate as quickly, so by being zapped each day, they don't get a chance to regenerate. All to build up the odds in my favor that this bitch doesn't ever return.
So, what's a typical treatment session like? Weird. It's all just weird.
I arrive at the Cancer Center and head back to the radiation waiting area. There are some chairs and the usual scattering of old magazines to read. There is also a table with a puzzle on it, so most of us poke away at the puzzle while we wait. A large glass door opens and one of the radiation technicians comes out to get you. They pull a warm blanket out of something that looks like a refrigerator and back you go to a huge room:
They hold the blanket up to you while you strip down to your waist (all sense of modesty or embarrassment has been completely removed from my psyche by now) and then hand you the blanket as you walk over to lay down on the 'bed'. Between me and the 'bed' is a blue "form". Before treatment began, I was brought in for a set-up session where I laid down on what felt like a bean bag pillow. The technician packed the bean bag all around me and then sucked all the air out.. leaving a hard form that forces me to lay in the exact same position for every treatment.
Once I'm laying in my usual position, the blanket gets removed from my right side (there goes the modesty again) and 2 to 3 technicians all stare down at me while one of them has a large remote control in their hand and moves the bed this way and that trying to line everything up. A light is shining down on me that illuminates a ruler, and the technicians rattle off various numbers to each other. Once I'm all set the way they like it, they leave the room and that large machine rotates around me and stops in 4 different locations and makes a long beep sound -- that's the radiation beam going off.
That's it. From the time I walk in, to the time I walk out, takes about 10 minutes.
So, why am I doing this? Didn't the chemo kill everything possible? Well, yes and no. The chemo goes through the bloodstream and kills off any potential cancer cells it can, but blood doesn't go everywhere. It doesn't penetrate scar tissue, nor the milk ducts of the breast - which is where my cancer started in the first place. That's where the radiation comes in. It specifically targets those areas on my effected side, once again killing cells. Healthy cells regenerate - cancer cells can't regenerate as quickly, so by being zapped each day, they don't get a chance to regenerate. All to build up the odds in my favor that this bitch doesn't ever return.
Thursday, July 3, 2014
Intermission
The month of June was "intermission" for me. Chemo was done and radiation was set to begin in July.
I had my last work event to go to.. the Astronomy conference in Montreal, Quebec. These guys build the large land and space-based telescopes. Remember Hubble? Or the big observatories found on mountain peaks around the world? These are the guys. Because the things they work on are so large, the exhibit is pretty interesting as they try to show off scaled models.. check out this one made of Lego!
Neil got to join me for the final weekend and we enjoyed exploring the beautiful city and its amazing basilica, Notre Dame. Montreal feels like Europe but without the long plane ride. We found the people to be very friendly (and very bi-lingual) and the food to be amazing.
I had my last work event to go to.. the Astronomy conference in Montreal, Quebec. These guys build the large land and space-based telescopes. Remember Hubble? Or the big observatories found on mountain peaks around the world? These are the guys. Because the things they work on are so large, the exhibit is pretty interesting as they try to show off scaled models.. check out this one made of Lego!
Neil got to join me for the final weekend and we enjoyed exploring the beautiful city and its amazing basilica, Notre Dame. Montreal feels like Europe but without the long plane ride. We found the people to be very friendly (and very bi-lingual) and the food to be amazing.
Tuesday, May 27, 2014
Finals Week
Remember
finals week? A week of one trial after
another. People on campus didn’t talk
much – everyone was buried in their books – sequestered in the library – or
hunkered down at a coffee shop.
Sometimes
life becomes a series of final exams – designed to test your will – your
fortitude – that inner strength that pushes you beyond which you thought you
were capable of coping… that’s what last
week was for me.
When I
arrived home from Baltimore a couple of weeks ago, my left arm was noticeably
swollen. I mentioned it to my chemo
nurse the next day and she thought perhaps it was a result of flying and my
altered diet from normal of Neil’s home cooking to eating out on the road. Over the course of the next week, the
swelling went down a bit, but it still felt tight and not quite right. My next chemo treatment – a week later – I
mentioned this condition again to my chemo nurse, and she immediately went to
chat with my doctor. While they weren’t
worried anything was life threatening, it was still something I should get
checked out. So the treatment went on as
planned and I left with an appointment for an ultrasound the next day.
Friday
afternoon, I head in for my ultrasound and there is definitely some kind of
blockage going on. So at 5:30 I get sent
to the ER to be administered a shot and get started on blood thinners. Lovely – just where I want to go on a Friday
night.
I arrive at
the ER and am escorted to a curtained “room” with a bed and told to hang
out. My neighbor to the right is a woman
who has fallen at her house and broke her shoulder in 4 places. My neighbor to the left arrives via the EMTs
– her name is Patricia – a nice little old lady that has dementia and keeps
complaining of chest pains (this is her 2nd time here in 2 weeks)
and she answers ‘yes’ to any question posed to her.
Finally, the
doc comes to see me and confirms that yes, I have a blood clot – though
apparently clots that develop in the arm aren’t prone to be life threatening,
but they want to make sure it doesn’t get any worse and I don’t develop any
more. Fair enough.
I get to
hang out for a couple of hours and I’m visited by a variety of nurses. Finally one comes in with my very own ‘home
injection kit’ and I’m told that I have to self-administer shots to my stomach
twice a day for the next 5 days. Are you
kidding me? She pulls out a syringe and
asks if I want to do it? Um – no thanks,
why don’t you do the first one?
I leave with
a prescription for 5 days of shots and pills and told if I hurry, I can make it
to the pharmacy before they close.
Test #1
complete.
The next
morning, I open up my little injection kit and just stare at the little
needle. Really? For once, I’m grateful for the added padding
around my mid-section, so I pinch a good inch, swab it with alcohol, pick up
the syringe and take a couple deep breaths…. 3 – 2 -1 – Go.
Test #2
complete.
Sunday
morning I take Neil to the airport – he’s off to Austin, TX for a
conference. I meet a friend for coffee
and then head home to mow the yard. Mom
and Dad are due to arrive in a couple of hours for a visit.
The next
couple of days are spent visiting with the folks and just hanging out. They take off around lunchtime on Tuesday and
I head off to meet up with Dr. Chemo to talk about my blood clot. Turns out he’s not too concerned – he’s sorry
it happened but knows that with my chemo almost over, this won’t be happening
anymore.
I came home
and made some cupcakes – I wanted to make something special to take to the
chemo nurses on Thursday for my final treatment. I spend the evening just hanging out with the
dogs and turn in around 10pm. As I turn
out the light, I hear a strange noise from the backyard. The dog door has opened, but it didn’t shut
properly and now there’s a weird noise coming from the gravel below. I get out of bed and look out the window,
trying to see something in the darkness.
What I see makes my heart stop – there is Mocha, my dog of 14+ years…
her back legs aren’t working and she is pulling herself through the gravel and
off into the bushes. I race down 2
flights of stairs with the other 2 dogs in hot pursuit and I pause at the back
door just long enough to pull on a pair of old sailing boots. I get to Mocha before she’s managed to drag
herself under the depths of a spiny, thorny bush and the poor girl is in a
panic and absolutely covered in beauty bark.
I manage to pick her up and carry her upstairs (thank you,
CrossFitX). I call the emergency vet and
they agree that I should bring her in, so off we go. X-rays are taken and nothing very decisive is
learned, so blood work is done and her protein levels are very low. This leads us to believe that there may have
been a tumor that ruptured and the resulting internal bleeding weakened her
enough that her already weak backend couldn’t function. They want to keep her the rest of the night
to monitor her and will continue to check her blood every 4 hours. I’m to return at 7:30 the next morning to
transport her to my vet so they can perform an ultrasound and we can hopefully
find out more.
I get back
home after midnight and Mambo and Murphy are both on edge. I send an email to the office to let them
know that I won’t be to work the next day and then fall into bed. At 5am, I get a text from my friend, Pam,
asking me what is wrong with Mocha? I
tell her what I know and she agrees to meet me at 7:30. Back at the emergency vet, we’re told that
Mocha was stable through the night but that she had not tried to stand at all,
so they prepare to carry her out to my car.
Suddenly, from the back we hear an exclamation, and here comes Mocha
walking through the door! She had heard
our voices and, in typical Mocha fashion, wanted to come out under her own
power. Stubborn old broad! She got to where I was standing and then
collapsed. No worries, Girl – we got
you. I try to thank the vet, but the
tears are too close to the surface and my voice just cuts off to nothing. She says ‘I hope you’re able to have more
time with her’. Dear God, I hope so too.
Now at
Northshore Vet, we talk to Dr. Colleen Coyne.
She tells us that she’ll take Mocha upstairs with her to the surgery
area and let her hang out with her for the morning until the 2 other vets can
perform an ultrasound. So now we
wait. Pam and I head off to a local
coffee shop and are soon joined by Michele Bodtke. Together, they try to keep my mind off what
my heart is dreading. After a couple of
hours, Pam heads home for a bit and Michele and I head downtown to grab a
sandwich. Just as we are entering the
restaurant, my phone rings and it’s the vet.
So, standing on a sidewalk, with both of our heads tilted toward the
cell phone, we listen. The ultrasound
suggests carcinoma tumors on her gallbladder, her spleen, her left kidney, plus
an enlarged liver and lymph nodes. It
doesn’t take a trained oncologist to see the writing on the wall, though we are
given various surgery options if that is a route we wish to pursue if I feel the need to prove what my heart is already telling me. We thank her and ask if we can have an hour
or so to talk things out. We’re told to
take whatever time we need, so we head into the restaurant and our poor server
has to deal with 2 crying women. After a
solid hour of talking through all the options and discussing whether waiting
for the next day so Neil could also be present was the right thing, we came to
the conclusion that what was best for Mocha would be to quietly end things
today. We communicate our plans with Pam
and the 3 of us rendezvous at Northshore Vet.
“Mocha’s Posse” has arrived. We
are escorted upstairs and meet once again with Dr. Coyne to let her know that I
have made up my mind and am confident that we are doing the right thing at the
right time. She lets me know that she
doesn’t have any commitments that evening, so if we wanted to take Mocha home
for a bit, she could come by the house after work and take care of things
there. That was the best news I had
heard in the past 18 hours, so we loaded Mocha onto a stretcher and I brought
her home. The next couple of hours were
wonderful. She laid down on her favorite
pillow in the sun and we all sat around and petted her while she napped. A little after 5pm, Dr. Coyne and a vet tech
arrived and it was all very peaceful.
Mambo and Murphy both got to sniff her and say their respective doggie
good-byes, as well as her human family.
I couldn’t help but wonder at the irony of it all… that Mocha passed on
the eve of my last chemo treatment. God
gives and God takes – her vigil over me was complete.

I pick Neil
up from the airport at midnight and once we’re home I head upstairs to fall
into bed. The day I have long dreaded is
done.
Test #3
complete.
The next
morning, I am solemn but collected.
Though my heart is heavy, I am at peace that I did the right thing at
the right time.
I spend the
morning finishing up the cupcakes for the nurses and then it’s time to head to the
anti-coagulation clinic to have my blood numbers checked. They check out within the range they are
hoping for, so from there it is on to the Cancer Center. There are 2 other women that are also on
their last treatment, so it is a party atmosphere when we walk back to the
infusion area. The cupcakes are a huge
hit and are quickly devoured by the wonderful staff. As the pump alarms go off for the other 2
ladies, signaling the end of their final bag of whatever chemical they have had
to endure, there are claps and cheers and tears all around. There aren’t as many folks left at the Center
when my final alarm sounds, but the cheers, joy, and elation I feel is not
lessened at all. The nurses hand me a
Certificate of Completion, signed by them all and I walk out of the infusion
wing for the final time. This horrible,
life-altering part of my cancer journey is done.
Test #4
complete.
What is next
only time, fate and the miracle of modern medicine will tell…but I am strong,
and in the words of Neil’s boss, Tony, ‘they can’t make it hard enough….’
Bring it!
Monday, April 14, 2014
A Week of Ups and Downs
I realize that it's been quite a while since I've posted here and I do apologize. Life has been busy - good, but busy.
Here's a quick catch-up for just last week alone...
Sunday/Monday/Tuesday
Mom and Dad come for a long overdue visit. Haven't seen them since Christmas, so there's much catching up to do. Our time together is wonderful and Dad and I always seem to communicate better when we're working on a project together - it's been like this since I was old enough to hold a flashlight.
Wednesday
First day back in the office this week and it's full steam ahead. Our Baltimore event is only 3 weeks away and there is still much to be done.
After work, I head out to meet up with a lady that will introduce me to a horse she is thinking of selling. God and the Universe work in the most mysterious ways... About 3 weeks ago, I was going through my old mare's things and the memories made me realize how much I missed that old part of my life. A week later, I mention this to the lady that gives my dogs their 'day of beauty' (AKA dog bath) and she tells me she knows a lady that has an 11 y/o Arabian gelding. And now, here I am headed out to a barn to meet 'Tailor' the horse and his trainer, Zabrina. The meeting goes well and I even have a chance to climb on and walk around a bit. It's been 9 years since I've been in a saddle, but it was the best feeling in the world. I agree to come back again on Friday.
Thursday
Work first and then 'chemo day'. Today is Treatment #10. I meet Neil at the Cancer Center and it's Nurse Dana today. Once again, the port flushes just fine, but refuses to give any blood back on the return. So they poke me in the arm to get the vial they need to run the labs, take my vitals, and then we wait for the lab report to come back. The numbers are all good (white blood cell, red blood cell, neutrophils, etc.) so that means we can proceed with the day's treatment. Pre-meds first - mostly a big dose of Benadryl and then we wait 15 minutes for those to make their way thru my system. Afterwards, it's an hour long drip of the chemo drug, Taxol. We are done a little after 6pm and head home to dinner and dogs.
Friday
Another crazy day at the office. I think I managed to cram 5 days worth of work into 3 this week. But my reward is to head out to the barn at the end of the day and meet back up with Tailor and Zabrina. Zabrina is already warming up Tailor when I arrive and then hops off and l hop on. Our lesson goes well and I head home with an ear-to-ear grin.
Saturday
Up early to meet Pam for a dog hike and then it's back to the barn for another session with Tailor and Zabrina. We try the outdoor arena this time (Tailor's first time out there) and he does great. How wonderful to be out riding in the spring sunshine!
I dash home to meet up with Neil and then we pack up for a weekend in Seattle. The dogs are dropped off at Pam's for a 'sleep over' and then Neil and I head down to attend a wedding... the daughter of a dear friend. The wedding is beautiful - the weather is perfect - the dinner and company were wonderful. And then the music started and all these beautiful people started dancing and I lost it. Suddenly, I was tired of being "sick" and tired of feeling "different" and tired of going through each day like none of this matters and that I'm stronger than all of this. Yes, I am strong, but every once in a while, there's a chink in the armor and the true emotions bleed through. I ask Neil to quietly get me out of there and I'm a sobbing mess by the time we reach the car. The tears help to cleanse the demons and after a few minutes, I feel my resolve return. I sleep soundly and awaken to a beautiful sunny morning... it's a new day.
Here's a quick catch-up for just last week alone...
Sunday/Monday/Tuesday
Mom and Dad come for a long overdue visit. Haven't seen them since Christmas, so there's much catching up to do. Our time together is wonderful and Dad and I always seem to communicate better when we're working on a project together - it's been like this since I was old enough to hold a flashlight.
Wednesday
First day back in the office this week and it's full steam ahead. Our Baltimore event is only 3 weeks away and there is still much to be done.
After work, I head out to meet up with a lady that will introduce me to a horse she is thinking of selling. God and the Universe work in the most mysterious ways... About 3 weeks ago, I was going through my old mare's things and the memories made me realize how much I missed that old part of my life. A week later, I mention this to the lady that gives my dogs their 'day of beauty' (AKA dog bath) and she tells me she knows a lady that has an 11 y/o Arabian gelding. And now, here I am headed out to a barn to meet 'Tailor' the horse and his trainer, Zabrina. The meeting goes well and I even have a chance to climb on and walk around a bit. It's been 9 years since I've been in a saddle, but it was the best feeling in the world. I agree to come back again on Friday.
Thursday
Work first and then 'chemo day'. Today is Treatment #10. I meet Neil at the Cancer Center and it's Nurse Dana today. Once again, the port flushes just fine, but refuses to give any blood back on the return. So they poke me in the arm to get the vial they need to run the labs, take my vitals, and then we wait for the lab report to come back. The numbers are all good (white blood cell, red blood cell, neutrophils, etc.) so that means we can proceed with the day's treatment. Pre-meds first - mostly a big dose of Benadryl and then we wait 15 minutes for those to make their way thru my system. Afterwards, it's an hour long drip of the chemo drug, Taxol. We are done a little after 6pm and head home to dinner and dogs.
Friday
Another crazy day at the office. I think I managed to cram 5 days worth of work into 3 this week. But my reward is to head out to the barn at the end of the day and meet back up with Tailor and Zabrina. Zabrina is already warming up Tailor when I arrive and then hops off and l hop on. Our lesson goes well and I head home with an ear-to-ear grin.
Saturday
Up early to meet Pam for a dog hike and then it's back to the barn for another session with Tailor and Zabrina. We try the outdoor arena this time (Tailor's first time out there) and he does great. How wonderful to be out riding in the spring sunshine!
I dash home to meet up with Neil and then we pack up for a weekend in Seattle. The dogs are dropped off at Pam's for a 'sleep over' and then Neil and I head down to attend a wedding... the daughter of a dear friend. The wedding is beautiful - the weather is perfect - the dinner and company were wonderful. And then the music started and all these beautiful people started dancing and I lost it. Suddenly, I was tired of being "sick" and tired of feeling "different" and tired of going through each day like none of this matters and that I'm stronger than all of this. Yes, I am strong, but every once in a while, there's a chink in the armor and the true emotions bleed through. I ask Neil to quietly get me out of there and I'm a sobbing mess by the time we reach the car. The tears help to cleanse the demons and after a few minutes, I feel my resolve return. I sleep soundly and awaken to a beautiful sunny morning... it's a new day.
Thursday, March 13, 2014
Sticker Shock
The medical bills are starting to trickle in and I've been getting notifications from my insurance company on other bills that they have processed. Let me just pause right here to publicly thank my employer, SPIE, for offering such amazing health insurance!! I've already met my deductible for the year, so as long as everything is approved, it should be paid at 100%. (fingers crossed)In perusing the Explanation of Benefits pages, I start adding up the charges for my first month of chemo treatments (2 total, plus 2 of those Neulasta shots that were used to keep my white blood cells from plummeting too far). Grand total just for that? Over $20,000! Are you kidding me? Doubling that will get us to the end of February and I still have 3 more months of weekly sessions to go!
So far, I'm feeling pretty good on the Taxol treatments. My next infusion (#2 of 12) is tomorrow. I still feel fatigued when I try to exert myself, but the dreaded nausea is gone. Thank you Lord! I actually felt good enough (ha!) to get up at 5am yesterday and get to my 5:30am CrossFit class. I hadn't been to that group since January 3rd and if was wonderful to see the folks again, though my performance was definitely humbling. The strength and stamina of old were gone - replaced with a weak, winded shadow of my former self. But even though I only did half the workout, it still felt great to be back. And the ridiculously sore muscles I feel today just make me smile.
Friday, March 7, 2014
The Next Phase of Chemo Begins
The dreaded 'AC' portion of my chemotherapy is done and now I'm on to 12 straight weeks of Taxol. According to the nurses, this phase should be a walk in the park compared to the AC. Let's hope so! The biggest fear was a slight chance of a major allergic reaction to the Taxol. Yesterday was my first infusion, so they packed on the pre-meds (a heavy duty Benadryl type product) and then watched me like a hawk as the first of the Taxol went in. Thankfully, there was no reaction, so I'm good to go.
I am finally seeing a light at the end of this tunnel. Yahoo!
I am finally seeing a light at the end of this tunnel. Yahoo!
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